What does a smile mean to you? To the National Foundation for Ectodermal Dysplasias (NFED), it means the world. Our joy is seeing our ectodermal dysplasias community thriving and happy. We want to make you smile!

We can’t do it alone. That is why we have the Smile Makers monthly giving program. This allows our generous donors to impact our work for our NFED families every month throughout the year.

One of our generous monthly Smile Makers is Rachel Nicksich. She gives from her heart every month to support our Send a Kid to Camp program. Send a Kid to Camp allows us to ensure that all kids at Kays’ Kids Camp and Teen Program are able to enjoy all of the Camp benefits, whether they are there in financial need or not.

The more kids that are at Kays’ Kids Camp and Teen Program, the merrier! More friendships are made. More questions are answered. More kids feel less alone in the world. That’s amazing!

We talked to Rachel to find out what drives her generosity for Send a Kid to Camp and to give monthly to this program. Here’s what she had to say.

How has the NFED impacted your life?

I have learned more about my disorder by having the opportunity to discuss issues related to my ectodermal dysplasia. I loved the Conference because the girls and boys were confident and not embarrassed about taking off their wigs or dentures. As I get older, I am an advocate for any person who has any disorder. One of my dreams is to work at St. Jude’s or the NFED so I can help children understand that it is okay to be different or unique.

Why did you become a monthly Smile Maker donor?

I became a monthly donor because it took three years for my geneticist to figure out what I had when I was little. I hope my money will help children get dentures or wigs. I also hope the remainder of my money goes to help research. Even though I am on a fixed income, it is important to me because not many people know about this disorder.

Why did you chose Send a Kid to Camp?

I chose Send a Kid to Camp because that was the best experience of my life! I wish I could go every year to see how people have changed and to thank the counselors and doctors and tell them how special they are.

One thing I would like any parent to know is having an ectodermal dysplasia is not the worst thing in the world. The hardest part is just waiting for your baby teeth to come in. Don’t be ashamed of how your children develop. All children who are specially-abled are unique and can teach people to be fearless.

Thank you, Rachel!

If you would like to give to Send a Kid to Camp, click here and select Send a Kid to Camp in the drop down menu. Select the monthly giving option, too! It allows us to fund the program throughout the year.

4 comments on “What does a smile mean to you?”

  1. 1
    Briana Hallisay on May 4, 2019

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    1. 3
      Jodi Edgar Reinhardt on May 15, 2019

      Thank you for the nice comments! We work hard to provide a site with information and resources for the ectodermal dysplasias community. We are glad you enjoy it! ~ Jodi, NFED, Director, Marketing and Community

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