We are delighted to welcome the following new members to the Board of Directors and Scientific Advisory Council (SAC) at the National Foundation for Ectodermal Dysplasias (NFED).

Roy Moffitt joins the Board of Directors. From Texas, Roy and his wife, Leslie, have been members of the NFED since 2010. They have four children, three daughters, Reese, Lexie, and Macy, and a son, Maverick, who is affected by hypohidrotic ectodermal dysplasia (HED). They have been active in the NFED attending Family Conferences and sharing Maverick’s story with HED.

“Maverick is affected with HED but lives like any other 8-year-old with very few accommodations,” Roy said. “By far, my family is my greatest accomplishment.

Roy worked in the fuel and oil distribution business from the ground up in the first 10 years of his career. He founded Frac Fuel Solutions five years ago and holds several patents.

“Once Maverick was diagnosed with HED, we found the NFED. Through the Foundation, we learned the value of a community that shares a similar journey: from medical advice to emotional support and ways to accommodate his condition. I look forward to helping give back to something that’s helped my family so much.

The Next Generation of the SAC

On the SAC, Beau Meyer, D.D.S., Ph.D. is our newest addition. Dr. Meyer is a Research Assistant Professor of Pediatric Dentistry at the University of North Carolina School of Dentistry. He is involved in a variety of clinical, educational, and research activities related to early childhood caries, understanding oral health disparities, and policy-related research.

He has worked closely with North Carolina Medicaid via the Department of Medical Assistance, Dental Division, as well as committees and councils of the American Academy of Pediatric Dentistry. He completed his dental degree at The Ohio State University College of Dentistry before completing his residency in pediatric dentistry and master of public health degree in health policy and management at the University of North Carolina at Chapel Hill. Beau and his wife live in Chapel Hill. Welcome, Dr. Meyer!

According to Mary Fete, NFED executive director, Dr. Meyer and the other new SAC members who joined in the last year will attend their first Family Conference in July to meet our families and learn more about ectodermal Dysplasias.

“We have been fortunate to have had doctors and dentists serve on our SAC for 20 or more  years,” Mary said. “They are incredibly committed to our families and our work. They are truly some of the world’s best experts on the conditions. As some of them are getting closer to retirement, we have the opportunity to have them mentor the next generation of care providers serving on the SAC.

One member of the SAC who is retiring is Margot B. Stein, Ph.D. This psychologist from the University of North Carolina at Chapel Hill has served on the Council since 2009. We have appreciated her talents in leading support workshops at the Family Conferences and talking with families. We thank her for her contributions and wish her well in her retirement!

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