By Craig and Julie Claeys
Our son is affected by HED and is now 17 yrs. old. We have been attending Family Conferences since 1996 and have not missed but a few. Since our first conference in 1996, we found attending was so beneficial for our son and us as parents to be able to stay educated from all of the workshops that helped us to manage his HED.
While we attended the many workshops, our son attended p and established friends in which he continues to see every year. He knows that he is not the only person affected by this rare condition and that others face similiar challenges as well. We believe that from attending these Family Conferences and being involved with the NFED for all of his 17 years, that he is a far more confident young man today.
We believe as parents that we, too, are confident in the way that we gained empowerment, education on dental needs and cooling ideas, skin issues, and most of all emotional support for our son.
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