2012 Family Conference Committee

July 18-21, 2012

Orlando, Florida

Our Family Conference Committee offered lots of great ideas for this year’s National Family Conference in Orlando. Because of their input, we have added a track for young adults and a “buddy” program where we will pair up veteran families with new families at the conference.

Let’s meet our wonderful volunteers on this committee!

Pam Kennedy

  • NFED Board Member
  • Lives in Florida
  • Has a grown son affected by HED

 George Barbar

  • NFED Board Member
  • Lives in Florida
  • Is affected by HED and has affected children

 Russ Wilson

  • NFED Liaison from Mississippi
  • Has attended multiple conferences
  • Affected by HED

 Lauren Tomberlin

  • Affected by HED
  • Liaison from Florida
  • Attended conference in Virginia

 Susan Hamm

  • Liaison from Texas
  • Son is affected by EEC syndrome
  • Attended multiple conferences

 Carrieann Heath

  • Mom of affected daughter–Posey
  • Last year was first conference attendance

 Dr. Kay Motil

  • Member of the Scientific Advisory Council
  • Speaker at multiple conferences

 Teresa Dennis

  • Son is affected by EEC syndrome
  • Attended multiple conferences

 Chris Huxman

  • Has two sons who are affected by EEC syndrome
  • Attended multiple conferences
  • Participated on this committee last year

 Jack Kriz

  • Affected by EEC syndrome
  • Attended multiple conferences—has been featured speaker at two different conferences
  • Board Member

Terri Matus

  • Grandma to Ally, Teetay to the rest of us!
  • Attended several conferences with her daughter and grandkids

Jason D’Angelo

  • Young adult from Florida
  • Grew up coming to the conferences
  • Loves to help out with the kids in Kids Camp

Karen Forman

  • Past Board Member
  • Attended several conferences
  • Has a grown son affected by HED

Thanks to this wonderful crew for helping us plan for 2012!

Leave a Reply

Your email address will not be published.