2012 Family Conference Committee
July 18-21, 2012
Orlando, Florida
Our Family Conference Committee offered lots of great ideas for this year’s National Family Conference in Orlando. Because of their input, we have added a track for young adults and a “buddy” program where we will pair up veteran families with new families at the conference.
Let’s meet our wonderful volunteers on this committee!
Pam Kennedy
- NFED Board Member
- Lives in Florida
- Has a grown son affected by HED
George Barbar
- NFED Board Member
- Lives in Florida
- Is affected by HED and has affected children
Russ Wilson
- NFED Liaison from Mississippi
- Has attended multiple conferences
- Affected by HED
Lauren Tomberlin
- Affected by HED
- Liaison from Florida
- Attended conference in Virginia
Susan Hamm
- Liaison from Texas
- Son is affected by EEC syndrome
- Attended multiple conferences
Carrieann Heath
- Mom of affected daughter–Posey
- Last year was first conference attendance
Dr. Kay Motil
- Member of the Scientific Advisory Council
- Speaker at multiple conferences
Teresa Dennis
- Son is affected by EEC syndrome
- Attended multiple conferences
Chris Huxman
- Has two sons who are affected by EEC syndrome
- Attended multiple conferences
- Participated on this committee last year
Jack Kriz
- Affected by EEC syndrome
- Attended multiple conferences—has been featured speaker at two different conferences
- Board Member
Terri Matus
- Grandma to Ally, Teetay to the rest of us!
- Attended several conferences with her daughter and grandkids
Jason D’Angelo
- Young adult from Florida
- Grew up coming to the conferences
- Loves to help out with the kids in Kids Camp
Karen Forman
- Past Board Member
- Attended several conferences
- Has a grown son affected by HED
Thanks to this wonderful crew for helping us plan for 2012!