Are you ready for a wonderful present from all of us at the NFED? Drumroll, please…
Senator Tammy Baldwin of Wisconsin will introduce a bill to the United States Senate in early 2018 calling for health insurance benefits for the dental care of ectodermal dysplasias! She and her team have written the legislation. We will share with you exactly what it says once she formally introduces the bill.
If you have been following our communications, you know that we have spent much of this year advocating for such a law and taking the early and necessary steps in that process. Many of you made our first Ectodermal Dysplasias Advocacy Day on Capitol Hill a huge success. Others of you participated in our Autumn is for Advocacy campaign and visited your federal legislators back in your own communities. You were successful in getting bi-partisan support for the house resolution (H.Res.464) about ectodermal dysplasias. All of these efforts have paid off! Thank you.
So, what do we need you to do now?
Nothing. Until Senator Baldwin introduces the bill, you do not need to do anything. This is likely the only time that we are NOT asking you to do something. Do not reach out to your senators or representatives right now. Watch for our communications in early 2018. When we tell you that Senator Baldwin has introduced the bill, then we will need you to take action – immediately and often.
Until then, enjoy the holidays! The road ahead to becoming a bill is still likely to be a challenging one, and perhaps a long one. It’s hard to know.
We hope that you are as happy as we are that we made another leap forward towards a law – a law that, if passed, means families in the United States who have ectodermal dysplasias will no longer have to go without dental care because they can’t afford it. They will no longer have to spend years in appeals to insurance companies to get benefits. They won’t have to fight for benefits to replace teeth due to birth that others automatically get due to injury or accident.
We thank our Family-Driven Advocacy Committee. These volunteers are tirelessly working on your behalf. They are NFED families who are dedicated to this cause.
We thank Senator Baldwin and her office for believing that our families deserve not only healthy smiles but the benefits to pay for them. Together, we are committed to seeing that the bill does indeed become a law. We promise you that.