Our 2011 National Family Conference is sadly enough over with.
Almost 400 individuals were in O’Fallon, Illinois to learn about the ectodermal dysplasias and met others who are similarly affected.  We are thrilled that so many families were able to join us.

If you were not able to attend this year’s Family Conference, we want to know what kept you from joining us.  Please take this very short survey so that we can better plan for the 2012 National Family Conference.

Take 4-Question Survey

Even if you were not able to  come to the Conference, you could  follow the events and photos on our blog or on Facebook or on Twitter.  Read what families have to say and what they learned.

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