Next week, we will announce several opportunities in our Autumn is for Advocacy campaign for you to make your voice heard about the need for a bill for health benefits for dental care of ectodermal dysplasias. Families, we need you to take action, to advocate.
Advocating for a law that will mandate benefits for insurance coverage for the dental care of ectodermal dysplasias is going to be a marathon, not a sprint. Families did a great job with our first step, Ectodermal Dysplasias Advocacy Day on Capitol Hill. We must continue that momentum. To do this, we will be coming to you at different stages of the process and asking for your help. This is one of those times.
You Have the Power!
It simply won’t be enough for the staff and Family-Driven Advocacy Committee to do this. Getting a bill written requires ALL of us to speak up and be heard. Families in all 50 states must reach out to their senators and legislators at least monthly to build relationships. Get ready to do your part next week. Commit it to your calendar. We will share with you what we need you to say and do.
Correcting the dental issues of ectodermal dysplasias is challenging enough. Paying for that care shouldn’t add to that challenge. If we don’t do this, you will continue to face frustrating insurance denials. You will continue to have to wage lengthy battles to get benefits approved…if you are successful. You will have extraordinary out-of-pocket dental care expenses. We want a better future for all of you, our families!
I am confident that we can be successful. Look at our 36-year history. Families have stepped forward every single time there was a need. We persevered, thanks to thousands of families who searched for a better tomorrow.
What You Can Do
Watch your email and social media for communication from us on what we are asking you to do to help ensure that families with ectodermal dysplasias get benefits for dental care. Then, take action! Advocate!
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