Nurse Taking Goltz Girl Temperature

There are many options for treating the numerous aspects of ectodermal dysplasia. We provide treatment information for many of the most common symptoms, based on the affected body part. To learn about these symptoms and treatment options in more detail, check out our library.


Skin

Several types of skin-related problems typically occur in ectodermal dysplasia. The following articles provide suggestions to prevent or minimize discomfort and self-consciousness for those that are most common.

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  • Diaper Rash
  • Seborrhea
  • Dry Skin
  • Eczema
  • Skin Infections
  • Enlarged Facial Oil Glands

Skin Treatment Articles from Our Library

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Hair

Unfortunately, there are no treatments that can change the structure of the hair. Care is directed toward preventing damage to the hair shafts.

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  • Improving Appearance
  • Hair Styling
  • Hair Transplants
  • Hair Growth Products

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Nails

Treating nail problems, even in people without ectodermal dysplasias, can be difficult. There is  a very limited number of therapies available. Like the hair, nails are made up of dead protein. Medications will treat secondary infections, but won’t correct inborn nail defects. On rare occasions, nail problems may be severe enough to interfere with daily activities and cause pain or recurrent infection. In these cases, a dermatologist (or in the case of toenails, a podiatrist) may need to surgically remove the nail.

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  • Absent or Irregularly Shaped Nails
  • Nail Grooming
  • Thick Nails
  • Loose Nails
  • Curved Nails

Nail Treatment Articles from Our Library

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Sweat Glands

Certain types of ectodermal dysplasia—including hypohidrotic ectodermal dysplasia (HED) – prevent you from sweating enough to cool your body when exposed to warm or hot environments.  It is called hypohidrosis when there is a lack of sweat in response to heat. It could be due to decreased or absent sweat glands or because the sweat glands present don’t function normally. Anyone with hypohidrosis  can easily become overheated. If overheating does occur, you should treat it immediately. Prolonged elevation of body temperature is dangerous and can be life-threatening. The good news is that those with hypohidrosis are able to engage in most activities, including team athletics if they take appropriate measures to stay cool.

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Eyes

Eye issues can include dry eyes, anykyloblepharon, corneal scarring, tear production, photophobia and discolored eyelids.

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  • Eye Problems In Ectodermal Dysplasias
  • Causes Of Increased Sensitivity To Light
  • Discolored Eyelids In Ectodermal Dysplasias

Eye Treatment Articles from Our Library

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Ears

Issues with the ears in ectodermal dysplasia can include hearing deficit, ear wax impaction, and small ear canals.

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  • When Should The Hearing Be Tested?
  • What Type Of Testing Should Be Done?
  • Is Ear Wax A Problem In Ectodermal Dysplasias?

Ear Treatment Articles from Our Library

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Nose

Ectodermal dysplasia can cause nosebleeds, saddle nose, thick mucous secretions and nasal rocks.

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  • General Nose Treatment Information
  • What Can Be Done About Crusty Nasal Secretions?
  • Are Nosebleeds A Problem In Ectodermal Dysplasias?

Nose Treatment Articles from Our Library

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Throat

Throat issues can include decreased saliva, raspy voice and speech.

Download our Treatment Guide for Throat Issues

  • Decreased saliva
  • Communication Problems In Ectodermal Dysplasias
  • When Should Speech And Language Be Evaluated?
  • What Can Be Done About These Problems?

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Respiratory System

The linings of the nose, larynx, trachea, and lungs are moistened by various glands, some of which may be defective in ectodermal dysplasias. There is little published information about respiratory problems in ectodermal dysplasias.


Gastrointestinal Issues

Issues can include food allergies, constipation, and gastroesophageal reflux.

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Growth and Nutrition

Different types of ectodermal dysplasia can affect a child’s growth, causing short stature or lack of weight gain.

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