Finding a dentist to treat the complexities of ectodermal dysplasia can be difficult. We have created a network of Dental Treatment Centers throughout the United States to help solve this problem. Our experienced partners at universities and in private practice treat those with ectodermal dysplasia using a multi-disciplinary team approach and most often at more affordable costs.
It is your responsibility to decide if the care is appropriate for you. You are also responsible for all payment of associated fees, which vary according to the location, and all travel, lodging and meal expenses associated with treatment. Be sure to ask the center whether or not they accept insurance. Each location varies. Treatment at our treatment centers is more affordable than elsewhere, but not free. You can apply to our Treatment Assistance Program for financial help if you meet the criteria.
We traveled from Hawaii to California to see Dr. Johnson who has teamed up with the foundation, in order to offer his superb talents at a discounted price for families with ectodermal dysplasia. After a six week process we were able to take his set home. Words cannot express a mother’s happiness watching her son bite into chicken nuggets for the first time where before he never would eat meat. My little guy had zero complaints about his new teeth. He loves them. I love them and I am so very thankful we were able to provide it for him with all of the help from my family and friends.– Sheila