Meeting the dental needs of people affected by ectodermal dysplasias is as important as meeting their medical needs. Early dental treatment for the child without teeth is especially necessary. We advocate that children missing teeth get dentures by the time they start school, but children as young as 2 1/2 can successfully wear dentures.

A boy with HED shows his smile before and after getting dentures. “Keegan was diagnosed with HED at the age of 18 months. At 2, we consulted with Dr. Stanford and put together a plan for dental treatment. Keegan was nearly 3 years old when his first tooth finally poked through. We started the denture process shortly after. It never occurred to me that him living without teeth was even an option. By the time Keegan started preschool, he was wearing an upper denture all day, every day.  He is very proud of his smile.  Today, Keegan is the same age I was when I started to hate my smile because of my own missing and cone-shaped teeth. Unlike me, Keegan is full of confidence and his joyful – and toothy – smile is contagious and inspiring.”
– Lindsey

Advantages of Proper Dental Treatment

  • Allows you to eat a wide variety of foods, improving nutrition
  • Improves smiles
  • Creates an age appropriate facial appearance, helping children to be accepted by their friends, families and others
  • Improves speech – sounds such as “ch, th, and sh” are easier following dental treatment, making words more easily understood
  • Stimulates tooth eruption when tooth buds are present
  • Positively affects psychological and emotional well-being

Our guide addresses the dental treatment process. We’ll go through when and where to begin, how to prepare your child, what to expect, what it costs, what to know about dentures and dental implants and more.

Download Our Dental Guide to Ectodermal Dysplasias

Dental Treatment Articles from Our Library

Young Adult Before And After ImplantsThis is a great document to provide to your dentist! We lay out the guidelines for healthcare professionals to manage the oral health problems of individuals affected by the ectodermal dysplasias. The guidelines are not intended to establish the standard of care, but to aid dentists and affected individuals in making informed choices about dental treatment. We give best practices for treatment for children, adolescents and adults.

Download Parameters of Oral Health Care 

Family Perspectives