A man with XLHED holds his denture.

Unfortunately, there is no cure for ectodermal dysplasia. Instead, the goal is to successfully manage the symptoms so that the individual can lead a healthy life and have a good quality of life.

Because the symptoms vary depending on the type of ectodermal dysplasia, the treatment plan will vary with each person too. Some people will experience mild symptoms that need minor treatment while others will have extensive health issues that need complex care.

A new diagnosis can be overwhelming. Where do I start? How do I find a doctor? How am I going to pay for this? We will help you navigate these questions. Get started by learning about choosing a doctor or dentist and your options for medical and dental treatment.

Funding Treatment

Treating the symptoms of ectodermal dysplasia can be costly. This is especially true for dental care, which may not be covered by your medical insurance. A person with ectodermal dysplasia can expect to spend more than $150,000 in a lifetime for dental care alone. We offer resources to make the care more accessible and affordable.