A man with XLHED holds his denture.

Unfortunately, there is no cure for ectodermal dysplasia. Instead, the goal is to successfully manage the symptoms so that the individual can lead a healthy life and have a good quality of life.

Because the symptoms vary depending on the type of ectodermal dysplasia, the treatment plan will vary with each person too. Some people will experience mild symptoms that need minor treatment while others will have extensive health issues that need complex care.

A new diagnosis can be overwhelming. Where do I start? How do I find a doctor? How am I going to pay for this? We will help you navigate these questions.

The steps to consider are