We love receiving stories from people affected by ectodermal dysplasias and their loved ones. These stories are crucial to helping us raise awareness of the conditions. We especially are looking for stories about your journey to get dental care and your experience with insurance in getting that care.

Telling your story is powerful! You have the ability help someone who is going through something you have. You may inspire them or possibly even change their life!

Try to write your story in 700-1,000 words in the space below. You can read other families’ stories of hope. Thank you!

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