You can donate to the NFED through the United Way or the Combined Federal Campaign. Learn how to double your donation through a matching gift.
Aidan Abbott tells us about his journey as an advocate for himself and the Ensuring Lasting Smiles Act.
Volunteering for Dr. Kathleen Motil is as natural as sunrises. Learn how she’s spent 20+ years helping families with ectodermal dysplasias learn about nutrition as a volunteer for the National Foundation for Ectodermal Dysplasias.
A teenager finds the National Foundation for Ectodermal Dysplasias (NFED) online and offers his talents to raise awareness. An expert coder, this bright young man learns the impact one person can have.
Volunteers helped us run every aspect of the 2018 National Foundation for Ectodermal Dysplasias Family Conference in Portland, Ore.
April is Volunteer Appreciation Month. A time to recognize, thank and celebrate volunteers. We respect and love our Volunteers yearlong but this is your special month to cheer you on for all you have done and do for those affected by ectodermal dysplasias and the NFED. We celebrate your service. It has become even clearer…
For John and Nicole Cooper, helping out at the National Foundation for Ectodermal Dysplasias is a family affair.
Jeanne Wang wanted to give back to the organization that helped her when her son was diagnosed with a rare syndrome called EEC. She quickly found that education and raising awareness empowered her!