We love when new volunteers step up to help the National Foundation for Ectodermal Dysplasias (NFED)! This month, we shine the spotlight on two genetic counseling students who are helping us with the Unknown Project.
Jill Radley has spent the last few decades as her son’s biggest cheerleader and advocate. But, she recently used her voice to advocate and tell HER story with ectodermal dysplasia. A teacher at heart, she’s sharing her wisdom with students, other parents and women about the attitude to take when life hands you challenges.
Your life can take a different path, one you never expected in a matter of a moment. Debbie’s changed when her first grandson was born. Little did she know on that day she would become a volunteer for the NFED.
Volunteers helped us run every aspect of the 2018 National Foundation for Ectodermal Dysplasias Family Conference in Portland, Ore.
For John and Nicole Cooper, helping out at the National Foundation for Ectodermal Dysplasias is a family affair.