Support Each Other: We are Family!

By Josh Long Why do we donate our time and money to the NFED?  Because the NFED is family!  Two years ago, we attended our first Family Conference in Orlando, Fla. through a very generous NFED scholarship.  The conference was a life-changing event for our entire family. We had mom, dad, son, daughter, grandma and grandpa in attendance. …

A Chance Meeting Changed my Life!

    By Frank Farrington, D.D.S., M.S. Affiliated with the Medical College of VCU, Dept. of Pediatric Dentistry, Richmond, VA Why have I stayed involved with the NFED and the Scientific Advisory Council, Patient Care Council, and the Board of Directors for so many years?  The answer is very simple. When you are on the faculty of a…

Together, We Will and Can Make a Difference!

By Julie Claeys When our son, Carver, was diagnosed in 1995 with hypohidrotic ectodermal dysplasia (HED) at just four months old, we found the NFED. I remember talking with Beverly from the foundation and her peaceful, calming voice assured me that they were there for us. It wasn’t long before I found myself selling raffle…