We are saddened to share the news that one of our beloved volunteer dentists has died. Read how Dr. Tom Vergo donated his time and talents to the Foundation for more than two decades.
Helping Hands
Over the last two years, the NFED had to adapt to virtual volunteerism and fundraising in response to a global pandemic. See how you can get involved with these efforts.
Alaskan Advocates Get 100% Support for ELSA from Their Legislators
Two Alaskan families have helped achieve an amazing feat. The Brubakers and Wentzels have every legislator in their state co-sponsoring the Ensuring Lasting Smiles Act (ELSA)! This month, we shine our volunteer spotlight on these Alaskans to celebrate their accomplishments and learn more about how they did it.
The Dickie Family’s Full Circle Moments with Ectodermal Dysplasia
John Dickie IV was a young adult when he attended his first NFED Family Conference in 1987. His eyes were opened when he saw older guys affected by ectodermal dysplasia who had families and careers. Their lasting impression made him and his family want to give back to the NFED family, too. Read about the Dickies’ ectodermal dysplasia journey, their love for the NFED, John’s adventures and the advice he has for parents.
Growing Up with the NFED: Meet Virginia
Virginia Higgins was just five years old when her mom, Fredia Shimchick, heard about a mom in the area who was looking for other families affected ectodermal dysplasias. Their family would be one of the first 12 families who called NFED their ectodermal dysplasia home. Find out about her love for the NFED family and why she gives back.
Team Nikko Finds Home in the NFED
Dave Reidenouer is the kind of dad and grandpa who jumps in to help when his family needs him. For him, family means, “coming together to overcome obstacles and challenges, working together to do fun and good things.” And that’s exactly what his family has done since their first grandchild, Nikko Vecchini, was born affected by hypohidrotic ectodermal dysplasia. Read how the NFED became their lifeline.
Gina Served With a Big Heart
We remember with love and gratitude one of our NFED moms and volunteers, Gina Quintanar.
Trio of Fall Events Raise Spirits and Funds
We salute families in three states for their incredible events benefitting the NFED.