The True Meaning In Life Is To Plant Trees, Under Whose Shade You Never Expect To Sit!

 By Ashli Matus-George Allyson Kelso’s Aunt Founder, Rally for Ally When Ally was born on December 22, 2004 in Oxnard, CA, it was an exciting time.  A new baby, Christmas for her three-year-old big sister, Morgan. My then fiancé, Tom, and I were recently engaged and planning a wedding, Kristin had a thriving career, and…

She Was One of the Founding Families as a Toddler in 1981. Today, She’s an Advocate for the Community.

Hi there, My name is JoAnna Nix and I volunteered last fall to help represent the NFED at my local Combined Federal Campaign (CFC) and State Campaigns.  The NFED is known as the Skin and Dental Dysfunction Foundation #10604 by the CFC. Being a government employee, I’ve seen that government workers really do care about their communities and want…

Together, We Will and Can Make a Difference!

By Julie Claeys When our son, Carver, was diagnosed in 1995 with hypohidrotic ectodermal dysplasia (HED) at just four months old, we found the NFED. I remember talking with Beverly from the foundation and her peaceful, calming voice assured me that they were there for us. It wasn’t long before I found myself selling raffle…

Volunteers are Love in Motion!

By Alanna F. Bree, M.D. Pediatric Dermatologist, A Children’s House for Pediatric Dermatology It has been an honor and a privilege to volunteer as a member and a secretary of the Scientific Advisory Council for the NFED.  The organization is a true blessing to so many. They not only do an excellent job of supporting and advocating…

Be a Genie for the NFED

All of us at some time or another have wished for a genie.  Rub the magic lamp and get three wishes.  How easy would that be!  Sadly enough, this doesn’t happen.  Why is that? Could it be because we no longer believe in magic?  What if we could borrow the magic lamp for even just…