By Janet Johnson Family Liaison for Nevada & Utah and more! I have been known to some colleagues to be a pointer, not a painter. This short blog is an attempt to answer the question “Why I volunteer for the NFED?” I truly believe the answer to that question is, “Why not?” My name is…
Welcome Home!
By Sue Kluzek I don’t know about you, but I am getting very excited about our NFED Family Conference this summer! It’s an exciting time for all of us. We (the NFED) are celebrating our 35th anniversary. We have new programming and a new format for some of the conference. It’s going to be great!…
Involvement: Get started today!
By Terri Matus, Grandma of Allyson Kelso, Member, Family Support Council and Co-Chair for Rally for Ally There are many reasons to volunteer one’s time for an organization. The obvious one is to be helpful and to assist others in order to enhance the programs provided by the organization, namely, the NFED. I like to think…
We are Family! My Brothers, Sisters and Me!
By Chris and DeAnn Huxman In 2001, our second son, Tyler, was born with ectrodactyly-ectodermal dysplasia-clefting (EEC) syndrome. We had never heard of EEC, had no information about it, and had no idea what the future would hold. We didn’t know where to turn or where to find information. While searching the web for anything about EEC,…
Dear NFED volunteers,
We can’t think of a lovelier way to acknowledge all of the hard work you do than by setting aside the month of April to recognize and thank you and all of our volunteers. Just last year alone we had 364 volunteers who dedicated more than 3,652 hours to the NFED. That is truly amazing! …
Need to be Needed? Beverly Meier's Response?
By Cathy Deters The year I retired from a teaching career (2008), I knew I would need to do something to occupy the time I had spent in the classroom. There was a void in my life and I wasn’t sure how to fill it. My dear friend, Beverly Meier, suggested that I volunteer for…
The NFED Doesn't Need You!
Who needs volunteers? Not the NFED. We can do without volunteers! No need to ask for a helping hand, our staff can do it all. Why create a strong Volunteer base? Volunteers are overrated, a nuisance, and a royal pain. Today is a celebration of mischief and misbehavior. It has become tradition on the first…
Who Could Say "No" to Mary Kaye Richter?
By John A. Stith, M.D. , Professor, Pediatric Otolaryngology Saint Louis University School of Medicine, NFED Board of Directors and Patient Care Council I have been privileged to serve the NFED as a member of the board of directors for several years. It seems like yesterday when Dr. Tim Reichert invited me to consider becoming…