Aubrey is a creative who is leading our At Home Edition of Kays’ Kids Camp and Teens Program. As a life-long member of the NFED family, she knows first-hand how important it is for kids with ectodermal dysplasia to connect and have fun.
February is Ectodermal Dysplasias Awareness Month. It’s a perfect opportunity to take action for the NFED family. Check out these ideas for easy ways to fundraise and make a difference.
Back in the 1980s, a prosthodontist named Dr. Albert D. Guckes became interested in the ectodermal dysplasias. He speculated that dental implants might be a viable treatment for affected adults who were missing teeth. His landmark study would impact generations to come with what they learned. We not only thank Dr. Guckes for this study but for what he did for the next three decades to help our families.
Nikko is a lucky little boy whose family has rallied around him with love and support. Grandpa David and uncle Paul headed off to an NFED Family Conference in search of answers. They found those…and so much more. Find out what they learned and how they are giving back.
You can help us crush our 2019 goals. Do you want to be a monster or a mummy? Want to bid on some great prizes? Or, could you make a few clicks to advocate for our important bill? We are looking for volunteers to help with all of these to improve lives for the ectodermal dysplasias community.
You can donate to the NFED through the United Way or the Combined Federal Campaign. Learn how to double your donation through a matching gift.
Volunteering for the NFED gives you the opportunity to meet and help others with ectodermal dysplasias. But, you are the one who may benefit most. Learn more and sign up today.
We thank our hard-working volunteers for the hours they so generously dedicated to the 2019 NFED Family Conference. Without them, this event would not be possible.