Struggling to survive with ectodermal dysplasia

By Vinesh Parekh Hello. My name is Vinesh. I am from India but currently live in Canada. I am 27 years old and have ectodermal dysplasia. I don’t have sweat glands. For me, having no sweat glands is a handicap. I moved to Canada two years ago because the temperature is cooler. In India, I felt as though I had no life because summer stays for most of the…

Managing Temperatures at Disney and Meeting Magical Friends

by Melva Jeter With the summer, comes the NFED annual Family Conference, this year in Orlando, Florida. Now, being from Colorado, I thought it was incredibly cool in 2010 when the conference was in Colorado Springs, but Orlando?  And so close to Disney World, Universal Studios and Sea World? This is a kid’s dream-come-true year!…