Rise Up and Celebrate Caregivers

Today, we rise up and celebrate all of the caregivers around the world as part of Ectodermal Dysplasias Awareness Month! We pay tribute to everyone who has made someone’s ectodermal dysplasia journey a little easier.

It’s Time to Rise Up for Rare!

You are invited to join us to celebrate our community! It’s Ectodermal Dysplasias Awareness Month and we have lots of fun ways for you to get involved and spread the word.