Our Teens are going to have an awesome fieldtrip to The Edge, the world’s largest laser tag arena on Friday 22 July, 2011. A 14,000 sq. ft. multi level arena with trees, castles, wizzards, vines and creatures. The NFED will provide 2 games of laser tag and pizza for the teens (age 12-18). The bus…
Special Request for Saturday 23 July, 2011
Get out your vintage NFED duds! On Saturday 23 July, 2011 at the National Family Conference, we want you to wear any shirt you have with NFED on it. Do you still have your “We Can’t Smile Without You” Shirt from the 1980s? Or, how about an old Family Conference shirt? Whatever you have, wear…
Why attend a National Family Conference II by Rachel Dahler
Hello NFED Family! My name is Rachel Dahler, from Cleveland, Ohio, and I am a 22 year old with HED. The NFED has been a huge part of my life since I was 6. That is when I attended my very first conference in Grand Rapids, Michigan. Since then, I have been to close to…
Childcare @ National Family Conference 2011: Important: Consent & Release Form
Corporate Kids Events Shortly, you will receive in the mail your National Family Conference Confirmation letter with additional information sheets to be filled out and e-mailed to Malinda@nfed.org or faxed to our office 618-566-4718 or bring the form filled out with you to the Conference! Below is one of these forms that need to be…
30th Anniversary Gala Wednesday 20 July 2011: Important Update: Transportation & Child care
You will receive your Family Conference Confirmation package shortly in the mail with additional information. One of them being the following: 30th Anniversary Gala Transportation & Childcare Update: Wednesday, July 20, 2011 Transportation The NFED will provide free transportation via coach bus from the National Family Conference site (the Hilton Garden Inn in O’Fallon, IL)…
Watch this video on the NFED National Family Conference!!
Hopefully this inspires you to attend this year’s conference at the Hilton Garden Inn in O’Fallon, Illinois! It will change your life. Watch and see why. https://www.youtube.com/user/EctodermalDysplasias?feature=mhum#p/a/u/0/Qok2STHX-T0 Since 1981, the National Foundation for Ectodermal Dysplasias has hosted an annual conference where individuals affected by ectodermal dysplasias and their families gather to receive information and support….
Motivational Speaker: John Foppe
On Thursday 21 July, 2011 we officially welcome you to our 30th Annual National Foundation for Ectodermal Dysplasias National Family Conference @ 1PM. Lunch is NOT included! Master of Ceremonies Sean Vora will welcome everyone and give a brief overview of the events that will take place throughout the weekend. You don’t want to miss…
Important Update: Registration Deadline & Hotel
National Family Conference Registration Deadline is Today, June 30th! There is still time for you to register. Don’t miss out on the opportunity to meet others affected by ectodermal dysplasia, hear from physicians who know about ectodermal dysplasias, and have a super, fun-filled conference experience. To register, simply fill out the registration form and fax…