Charlotte Smith knows what it’s like to be a young woman with thin hair. Learn her best hair tips and how having hair has changed her.
A team of researchers have published findings from the first longitudinal study of COVID-19 and HED. Find out what the risks and what they recommend to prevent them.
Meet, Quiel Barrameda, a 35-year-old man from the Philippines who was born with hypohidrotic ectodermal dysplasia (HED). Learn how he stays cool and overcame major challenges with the love and support of his family.
Auggie and Dakota Olive have hypohidrotic ectodermal dysplasia, but they don’t sweat it. Hear how they overcame multiple obstacles and swam their way to the national championships.
It’s not easy when your child is not growing as expected. You want them to be healthy. A mom shares her emotional journey with her toddler who has failure to thrive (FTT) and hypohidrotic ectodermal dysplasia. Explore a new resource the NFED offers for FTT.
The Fenoglio / Fodor family is showing their son Jackson how proud they are of him by volunteering. They believe in supporting your family. And for them, the NFED is family.
Hoarse voice? Difficulty swallowing? Dry mouth may be cause your issue. Learn about how ectodermal dysplasia can affect your salivary glands and what you can do to manage it.
Olivia was surprised that strangers would want to hear her story. She’s promoting acceptance through Operation in Full Bloom. Read the finale to this pageant winner’s story.