You can help us crush our 2019 goals. Do you want to be a monster or a mummy? Want to bid on some great prizes? Or, could you make a few clicks to advocate for our important bill? We are looking for volunteers to help with all of these to improve lives for the ectodermal dysplasias community.
Why Volunteering Can Change Your Life
Volunteering for the NFED gives you the opportunity to meet and help others with ectodermal dysplasias. But, you are the one who may benefit most. Learn more and sign up today.
Teen Coder Inspired to Volunteer
A teenager finds the National Foundation for Ectodermal Dysplasias (NFED) online and offers his talents to raise awareness. An expert coder, this bright young man learns the impact one person can have.
Volunteer Spotlight: Our Folders, Stuffers and Filers Oh My
When we asked some of our office volunteers why they volunteer for us, they mentioned an array of reasons from making a difference, helping others and learning new things. We welcome their assistance more than they ever know. Their help has been especially valuable during some of our hectic seasons, like the Family Conference, fundraising…
Need to be Needed? Beverly Meier's Response?
By Cathy Deters The year I retired from a teaching career (2008), I knew I would need to do something to occupy the time I had spent in the classroom. There was a void in my life and I wasn’t sure how to fill it. My dear friend, Beverly Meier, suggested that I volunteer for…
The NFED Doesn't Need You!
Who needs volunteers? Not the NFED. We can do without volunteers! No need to ask for a helping hand, our staff can do it all. Why create a strong Volunteer base? Volunteers are overrated, a nuisance, and a royal pain. Today is a celebration of mischief and misbehavior. It has become tradition on the first…
Volunteering for the NFED is My Opportunity to Give Back
By David Sanmiguel The NFED has been a very important part of my family’s life, since the day my daughters were diagnosed. The moment my family and I became members of this great organization we only received good things, along with a warm welcome, understanding, help, information and great times. Simply put, everything has been wonderful. Our…