A Friend Diagnosed My Grandson

By Nancy Jane Johnson I’d like you to meet Ethan Noble.  He lives in Ellensburg, a small college town in the middle of Wash. which has quite distinctive seasons, snow in winter, 100+ degrees for a short time in summer and lots of wind!  Ethan was born in York, Maine and is almost 15. He…

Free Genetic Counseling Services for Families Affected by HED or XLHED

Learn More on Live Chat –  Thursday, May 29 on Our Facebook Page – 6:30 – 7:30 p.m. Central Time Dear NFED Families, Edimer Pharmaceuticals has teamed up with Informed DNA to provide free genetic counseling services to families who have or suspect to have hypohidrotic ectodermal dysplasia (HED) or x-linked hypohidrotic ectodermal dysplasia (XLHED). Informed DNA…