Support Each Other: We are Family!

By Josh Long Why do we donate our time and money to the NFED?  Because the NFED is family!  Two years ago, we attended our first Family Conference in Orlando, Fla. through a very generous NFED scholarship.  The conference was a life-changing event for our entire family. We had mom, dad, son, daughter, grandma and grandpa in attendance. …

Be a Genie for the NFED

All of us at some time or another have wished for a genie.  Rub the magic lamp and get three wishes.  How easy would that be!  Sadly enough, this doesn’t happen.  Why is that? Could it be because we no longer believe in magic?  What if we could borrow the magic lamp for even just…

Bruno's Golf Outing 10 September 2011!

Bruno’s 16th Golf Outing in Blue Island, IL sponsored by the Swierczeski family, to raise money for the National Foundation for Ectodermal Dysplasias was a huge success.  The Swierczewski Family raised more than $11,000 with their golf outing on Saturday 10 Sept. It is all about spreading awareness, being visible & having fun doing so.  Enjoy the pictures! Thanks to everyone…