Team Nikko Finds Home in the NFED

Dave Reidenouer is the kind of dad and grandpa who jumps in to help when his family needs him. For him, family means, “coming together to overcome obstacles and challenges, working together to do fun and good things.” And that’s exactly what his family has done since their first grandchild, Nikko Vecchini, was born affected by hypohidrotic ectodermal dysplasia. Read how the NFED became their lifeline.

Rise Up and Volunteer

February is Ectodermal Dysplasias Awareness Month. It’s a perfect opportunity to take action for the NFED family. Check out these ideas for easy ways to fundraise and make a difference.

A Grandmother’s Take on Ectodermal Dysplasia

As a baby, Weston Walker experienced all of the same issues his mom, Randi, had when she was born. He struggled to breathe. He choked and spit up a lot. He didn’t cut teeth. For Debbie Reed, Randi’s mom and Weston’s grandma, it was heartbreaking to live it all over again. They visited doctor after doctor, asking if this was normal. Read how a diagnosis changed how this grandma looks at life.

Get Baking With Cookies for a Cure

Love cookies? (Who doesn’t?) Want to support the National Foundation for Ectodermal Dysplasias (NFED) and spread awareness for ectodermal dysplasias? We have the perfect fundraising opportunity for you — cookies for a cure.

Why Oliver Is Smiling Even Bigger

Oliver wakes up every morning with the biggest smile in the world even though he has only six teeth. He’s affected by hypohidrotic ectodermal dysplasia. Last Tuesday, Oliver received his dentures and he is thrilled! Now his usual big smile is even bigger. In honor of Oliver, his parents, Matt and Vanessa Nehrkorn, recently held…