2019 Annual Impact Report

Since 1981, our mission has focused on families affected by ectodermal dysplasias. We are proud of the extraordinary accomplishments we have achieved in our nearly four decades. 2019 was no exception. Read to see the impact we made for our NFED family.

Help Us Crush Our 2019 Goals

You can help us crush our 2019 goals. Do you want to be a monster or a mummy? Want to bid on some great prizes? Or, could you make a few clicks to advocate for our important bill? We are looking for volunteers to help with all of these to improve lives for the ectodermal dysplasias community.

We want to thank you.

In recent years, there has been a growing trend to create a “Gratitude Jar” as a visual reminder of the wonderful things in our lives. Every day (or as often as possible), you put in a note about something that happened that day that gives you gratitude and thanks.  At the end of the year,…

Get Baking With Cookies for a Cure

Love cookies? (Who doesn’t?) Want to support the National Foundation for Ectodermal Dysplasias (NFED) and spread awareness for ectodermal dysplasias? We have the perfect fundraising opportunity for you — cookies for a cure.

Expanding Our Volunteer Team in 2017

Service and giving are qualities that are greatly cherished by all of us at the NFED.     You, as a volunteer, help our organization by lending a kind helping hand – and our only payment to you are wages of love, gratitude and knowing that you are making a significant impact on lives.  Everyone has such busy…