By Dee Dee Olsen I have led a most beautiful life. I have been graced by God with loving parents, devoted sisters, brothers-in-law, six incredible nieces and nephews, treasured friends and a husband who embodies strength, hard work and consideration. We brought three little people into this world. They breathed new dimensions of love and…
Fulfilled by Fundraising for Our NFED Family
By Rich and Aimee Klinger We packed our four children and luggage into our nine-passenger suburban on Sunday July 22, 2012 and headed south from our home in Halifax, PA. As we departed, we were skeptical about our adventure. We had traveled 1050 miles in approximately 18 hours to Orlando, Florida to attend our first NFED Family Conference. We…
Howdy!
By Susan Hamm I’ve always been the type of person to volunteer for projects or causes I was passionate about and the NFED was no different. I attended my first Family Conference and came home with an overwhelming amount of information on this syndrome that I had barely learned to pronounce. After processing what I…
I'm on My Way!
Good evening! I am in Hayes, Kansas and headed for Denver and then to Colorado Springs. I am on my way! We have Tim’s Expedition packed to the max and of course, full of my treats for the drive. We left last night after Tim got home, a little later than we hoped. The wind…
Support Each Other: We are Family!
By Josh Long Why do we donate our time and money to the NFED? Because the NFED is family! Two years ago, we attended our first Family Conference in Orlando, Fla. through a very generous NFED scholarship. The conference was a life-changing event for our entire family. We had mom, dad, son, daughter, grandma and grandpa in attendance. …
Top 10 Reasons to go to Family Conference
10. Be inspired or be inspiring! 9. Have an experience you will never forget, like dancing Gangnam Style on stage with all your friends. 8. Meet the family liaisons and enjoy their opening ceremony antics! 7. Meet the NFED staff in person! 6. Show off your talents during the talent show! 5. Learn new ways to care for…
Be a Genie for the NFED
All of us at some time or another have wished for a genie. Rub the magic lamp and get three wishes. How easy would that be! Sadly enough, this doesn’t happen. Why is that? Could it be because we no longer believe in magic? What if we could borrow the magic lamp for even just…
Four Days of Normalcy
By Rachel Dahler Every summer during the third week of July, the NFED hosts a National Family Conference. This has always been my favorite time of year. I went to my first Conference in 1995 when I was six and have been to 15 since. I can remember when I was younger, printing out countdown…