Volunteers Needed for Ongoing AEC/EEC Research

Volunteers are needed for ongoing research to design novel therapies for the treatment of skin and cornea lesions that occur in individuals with ankyloblepharon-ectodermal defects-cleft lip and/or palate (AEC) syndrome or ectrodactyly-ectodermal dysplasia-clefting (EEC) syndrome. The National Foundation for Ectodermal Dysplasias has supported this research led by Maranke Koster, Ph.D. at University of Colorado Denver.

Our Powerful Week of Education

Amazing!  Wonderful!  Informative! Fantastic!  Life-Changing! Educational Empowering! Fun! Fascinating! What word best describes our week in Washington D.C.?  They all do!  For me, it is hard to really describe the impact that week made on our entire community.