Must See In Washington DC…

Washington D.C. is not just our country’s capitol.  It is filled with delicious places to eat, cultural events and filled with American history. You can find it all in DC.  Here is just a slice of places you can visit while you are there during Family Conference.  You can also view other places to see…

Family Conference Sponsors Needed

Each year, we hold our Family Conference that provides life-changing experiences for our families at the National Foundation for Ectodermal Dysplasias (NFED).  Annually, 300 to 400 people from all over the world and the U.S. get to experience that they are no longer alone. They get to connect with other families and talk to doctors…

10 Tips for Family Conference First-Timers

Are you heading to Falls Church, Virginia, this summer to attend the National Foundation for Ectodermal Dysplasias Family Conference? Our veteran attendees have some great tips for you. Some of the best knowledge you gain is from the interaction with other families. Ask,ask,ask…anything! Write down all your questions so you don’t forget. Everyone is there…

Expanding Our Volunteer Team in 2017

Service and giving are qualities that are greatly cherished by all of us at the NFED.     You, as a volunteer, help our organization by lending a kind helping hand – and our only payment to you are wages of love, gratitude and knowing that you are making a significant impact on lives.  Everyone has such busy…

Things to do in the hotel during Conference

Curious about what you can do during your spare time at the Family Conference.  They offer: Business center. Need to work for a few hours while at the conference.  Here is what the business center has to offer: Audio/Visual Equipment Rental Complimentary Printing Service Fax Meeting Rooms Photo Copying Service ($0.10) Printer Indoor Pool.Too hot…

Things to do in Chesterfield

Sachs Butterfly House at Faust Park (6 minutes from hotel): More than a thousand live tropical butterflies fly freely in the glass conservatory at the Sophia M. Sachs Butterfly House. Watch a butterfly emerge from a chrysalis right before your eyes. Or go outside and visit native and migrating species in the Butterfly Garden. (*$6 general…

FREE Things to do in St. Louis

If you are coming to St Louis before Family Conference or staying after…check out these fun things to do in St Louis. City Garden – Downtown: This outdoor garden includes art, plants and several water features.  The water features include a splash pad and two wading pool areas. This is approximately a 25-minute drive from the…