Our Volunteers Are Worth Their Weight In Gold!

For National Volunteer Month, the National Foundation for Ectodermal Dysplasias celebrates its volunteers for their 5,000 hours of service. It is mind boggling the tasks they accomplished to help the NFED and those affected by ectodermal dysplasias. Watch our tribute video and learn how you can volunteer to be a Social Media Ambassador, Advocacy State Lead or fundraiser.

Ectodermal Dysplasias Awareness Month 2019

Join others affected by ectodermal dysplasias worldwide to unite for Ectodermal Dysplasias Awareness Month in February. Help us raise awareness of these rare conditions. Our campaign is focused on awareness of the symptoms, its impact on teeth and the need for a law in the United States to get coverage for treatment.

Teen Coder Inspired to Volunteer

A teenager finds the National Foundation for Ectodermal Dysplasias (NFED) online and offers his talents to raise awareness. An expert coder, this bright young man learns the impact one person can have.

Show Us Your Super Smile

You can join families around the world in celebrating Ectodermal Dysplasias Awareness Month and Rare Disease Day. Use our easy tools to share your story and advocate for super smiles. Teeth are not cosmetic! Post our flyers. Share your story. Host a Facebook fundraiser. Attend a Rare Disease Advocacy Event.