The NFED has new things in store for the ectodermal dysplasias community in 2020. Find out what we have planned and how you can be a part of it.
The Ensuring Lasting Smiles Act will get its first hearing in the House of Representatives. Kevin Koser will testify on behalf of individuals affected by congenital anomalies. Learn how you can help at this critical time.
A teenager from Wisconsin captures national award for his courage to share his struggles with ectodermal dysplasias and create change.
Possible ectodermal dysplasia. Genetic. Life-long battle. These are not the words a parent wants to hear about their sweet little girl. But, Ashley Braden heard them and she cried. Then she reached out to the NFED for help.
Find out what the NFED Is doing so that health insurance will cover your dental care – and how you can help. Plus, discover resources to help you file successful claims.
Donna Garrett-Miller details how her grandson, Noah, was born with complications that led to an Ankyloblepharon-Ectodermal Defects-Clefting (AEC) syndrome diagnosis.
You can help us crush our 2019 goals. Do you want to be a monster or a mummy? Want to bid on some great prizes? Or, could you make a few clicks to advocate for our important bill? We are looking for volunteers to help with all of these to improve lives for the ectodermal dysplasias community.
Persistence is the name of the game for getting a bill passed in Congress. NFED leadership was in D.C. last week speaking up for issues important to our families.