You are Strong!

As the challenging times continue, we know a few things are certain. You are strong. Together, we are stronger. Find about the exciting projects we are launching this summer to bring us together.

How Virtual Advocacy Day Works

Find out how easy it is to participate in a Virtual Advocacy Day! We’ll you through the process of how you can raise your voice and help move the Ensuring Lasting Smiles Act through Congress.

ELSA Reaches Supermajority in the House

Our advocates’ hard work is paying off! It’s been one year since the Ensuring Lasting Smiles Act (ELSA) was re-introduced in Congress. We now have a supermajority in the House who are cosponsoring it!

This Law is For You

Have you spent a year or more fighting for a health insurance claim? What has the emotional and financial impact been on you and your family when you go without care? Continual insurance denials needlessly take a toll on you and your health. The Ensuring Lasting Smiles Act can change all that. Your involvement right now is critical.

Tellin’ the Truth About Advocacy

Have you ever said to yourself that you can’t advocate because you don’t know what you are doing or don’t have the time or can’t travel? NFED advocate Beth Orchard dispels those myths and empowers you to take action.

Rise Up and Volunteer

February is Ectodermal Dysplasias Awareness Month. It’s a perfect opportunity to take action for the NFED family. Check out these ideas for easy ways to fundraise and make a difference.

Big Plans for 2020

The NFED has new things in store for the ectodermal dysplasias community in 2020. Find out what we have planned and how you can be a part of it.

ELSA Gets Its First Hearing in the House

The Ensuring Lasting Smiles Act will get its first hearing in the House of Representatives. Kevin Koser will testify on behalf of individuals affected by congenital anomalies. Learn how you can help at this critical time.