February is Ectodermal Dysplasias Awareness Month. It’s a perfect opportunity to take action for the NFED family. Check out these ideas for easy ways to fundraise and make a difference.
Big Plans for 2020
The NFED has new things in store for the ectodermal dysplasias community in 2020. Find out what we have planned and how you can be a part of it.
Collaborating With Leaders Around the World
In early October, NFED Executive Director Mary Fete met with leaders from eight other ectodermal dysplasia support groups/organizations in Germany. Find out what they talked about and what they have planned for 2-20-20!
Families Raise Awareness Around the World
Our community worldwide united online in February for Ectodermal Dysplasias Awareness Month! Our goal this year was to raise awareness about the symptoms, its impact on teeth and need for the Ensuring Lasting Smiles Act to get coverage for treatment. And you helped us do that!
What’s going on at the NFED?
Find out what the National Foundation for Ectodermal Dysplasias recently published in research, will be announcing about the Ensuring Lasting Smiles Act and is planning for 2019.
Ectodermal Dysplasias Awareness Month 2019
Join others affected by ectodermal dysplasias worldwide to unite for Ectodermal Dysplasias Awareness Month in February. Help us raise awareness of these rare conditions. Our campaign is focused on awareness of the symptoms, its impact on teeth and the need for a law in the United States to get coverage for treatment.
A Grandmother’s Take on Ectodermal Dysplasia
As a baby, Weston Walker experienced all of the same issues his mom, Randi, had when she was born. He struggled to breathe. He choked and spit up a lot. He didn’t cut teeth. For Debbie Reed, Randi’s mom and Weston’s grandma, it was heartbreaking to live it all over again. They visited doctor after doctor, asking if this was normal. Read how a diagnosis changed how this grandma looks at life.
Show Us Your Super Smile
You can join families around the world in celebrating Ectodermal Dysplasias Awareness Month and Rare Disease Day. Use our easy tools to share your story and advocate for super smiles. Teeth are not cosmetic! Post our flyers. Share your story. Host a Facebook fundraiser. Attend a Rare Disease Advocacy Event.