40 Years of Support

Andrew James’ first year of life was traumatic, requiring many ER visits for unknown reasons.

When his parents finally had a reason for their baby boy’s health challenges, ectodermal dysplasia, they turned to the NFED for support.

The NFED is proud to have supported the James family and other families like them for 40 years!

One of Our Smile Makers

At the National Foundation for Ectodermal Dysplasias (NFED), one thing is for sure, we love our families! When we support our families, we certainly appreciate when they support us back. One of the most loyal and sustaining ways to support the NFED is through our monthly giving program, the Smile Makers. One of our amazing…

We Exceeded Our Goal!

Thanks to all of you who set up Facebook Fundraisers and who donated whether it was through Facebook, our website, or through the mail, we received over $39,000 in donations on #GivingNFEDTuesday. To say we were overwhelmed by the generosity of our NFED community would be an understatement. Thank you from all of us at the NFED for your…

Launching a Major Research Campaign

We stand at an unprecedented time in history. Preliminary findings from research show great promise for eradicating two symptoms of the most common k ind of ectodermal dysplasia. It’s extraordinary! But without funding, this research study and others will not continue. We are launching the “Impact Cures, Now” campaign to raise $300,000 in the next three years for ectodermal dysplasias research.

Kick off the New Year by Becoming an NFED Smile Maker!

Join our quick, easy, and affordable monthly giving program, the National Foundation for Ectodermal Dysplasias (NFED) Smile Makers, today! Thousands of affected families and individuals have turned to the NFED as a pillar of hope.  Please grow and sustain our work so we can continue to support our friends and family affected by ectodermal dysplasias….