What Does Good Dental Care Look Like?

What does good dental care look like? Dr. Beau Meyer outlines five elements to help you know what to expect as you work with your dentist or dental team.

Dr. Karen McAndrew Helps Children Get Teeth

Prosthodontist Dr. Karen McAndrew is helping patients with ectodermal dysplasia get the treatment they need over their lifetime.

Ectodermal Dysplasia Treatment Videos Now Available

The one thing all our families want is information about ectodermal dysplasia treatment. You want to know what to expect for you or your child. You are seeking treatment options. You are looking for answers. That’s where the National Foundation for Ectodermal Dysplasias comes in. We now have six free videos of educational workshops from our 2017 Family Conference available to watch. You can hear from our experts, see their presentations and learn.

Missing Teeth, Missing Benefits

It’s common for someone to be missing a tooth or even two teeth. Some studies report about 20% of all adults are congenitally missing at least one tooth. More than 5% of us lack one or more second premolars or upper second (lateral) incisors. Though, numerous missing teeth, is less common. Leads to Diagnosis When…

Life with Ectodermal Dysplasia

By Julie Kennedy Thirty years ago, my family began the journey called, “life with ectodermal dysplasia.”  We didn’t know it at the time, but my husband had tooth and nail syndrome.  Many in his family had it, but it was just shrugged off as weird shaped and missing teeth, a “Kennedy Thing.”  It was not discussed…

2016: Our Year in Review

When I look back over 2016, it brings a smile to my face when I see what we, the National Foundation for Ectodermal Dysplasias (NFED) family, have accomplished. We have truly been blessed with a wonderful year. You helped us accomplish many goals. We are truly grateful that each of you are a part of our family.