How to Turn Volunteering into a Presidential Service Award

Helping the NFED as a volunteer can add a Presidential Service Award to your resume or college application. We have numerous ways that you could help as a volunteer. Learn how. We offer several toolkits which make volunteering easy.

From Shy to Smiling Spokesperson for Ectodermal Dysplasias

By Dawn Richardson I rarely had to trim Savannah’s toenails after she was born, and her fingernails were thin and brittle. I had very little experience with infants, so I did not realize this is not typical of children.  Her baby teeth erupted mostly on schedule.  Aside from being small and missing a set of…