AAD’s Camp Discovery

The American Academy of Dermatology’s (AAD) sponsors a free camp for children ages 8-16 who have a chronic skin disease called Camp Discovery.

NFED Families on Capitol Hill

By Marc Steingesser NFED Liaison On Tuesday, September 29th, I represented the NFED on Capitol Hill along with Jeanne Wang and her son, Nollan, and Kristin Matus-Kelso and her daughter, Ally. We joined other rare skin disorder advocates and members from the American Academy of Dermatology (AAD) to share our concerns and issues with members…