Clinical trials are a crucial part of finding treatments and cures for ectodermal dysplasias. Clinical research is the way that drugs, devices or other treatments are tested in humans to see if they are safe and effective. A clinical trial may find that a new strategy, treatment, or device improves patient outcomes, offers no benefit or causes unexpected harm.


We will share information about any clinical trials for ectodermal dysplasias. A key component to these trials will be for affected individuals to be willing to participate in research.

Learn more about clinical trials at