Webinar: How to File Your Ectodermal Dysplasia Insurance Claims Like a Pro

This is a recording of a webinar that took place on February 12, 2020. Families affected by ectodermal dysplasias in the United States have faced problems for decades in getting their health insurance to pay for the dental care they need. Too often, their claims are rejected because the care is deemed “cosmetic.” Or, families…

Webinar: Eye Concerns Related to the Ectodermal Dysplasias

We hosted this webinar in 2011. The ophthalmologist from our Scientific Advisory Council, Richard A. Lewis, M.D., M.S., explains how ectodermal dysplasias can affect the eyes and suggest possible treatments. Dr. Lewis is Professor in the Departments of Molecular and Human Genetics, Ophthalmology, Medicine, and Pediatrics at Baylor College of Medicine in Houston, Texas. He has…