Facebook fundraiser are an easy way for you to not only raise money for the NFED but to raise awareness about ectodermal dysplasias. This tool kit walks you step by step through the process of setting up a Facebook fundraiser to benefit the NFED. It includes directions for PC and mobile/tablet along with screen shots. It…
Dental Providers Insurance Tool Kit
Dental care is a medical necessity for those affected by ectodermal dysplasias, but most health insurance claims related to this care are automatically denied. We encourage individuals and families as well as dental providers to download our Dental Providers Insurance Tool Kit as a way to navigate this tricky situation. FOR DENTAL PROVIDERS Help patients…
Tooth Party Kit
Is your child getting a new set of dentures? Help them celebrate by throwing a Tooth Party! This Tooth Party Kit will help you make it a fun event for your child. It’s a great way to encourage them to wear their dentures. It includes materials for activities coloring pages bookmarks certificates and more! Start…
Advocacy Tool Kit
This guide explains everything you need to know to advocate for ectodermal dysplasias. In it, you will find the following: Tips for everything you need to know to have a great day on Capitol Hill. Step-by-step list of what to do to prepare for Advocacy Day. Sample Letters to Legislators Templates you can use to create…
Insurance Tool Kit
A Step-by-Step Guide to Get Medical Benefits for Dental Care of Ectodermal Dysplasias Families affected by ectodermal dysplasias encounter a wide range of challenges as they strive to meet their needs and that of their children. They face troublesome problems such as treatment issues, school concerns and dealing with insurance companies. Ectodermal dysplasias are a diverse…
School Packet
This NFED School Packet includes the following: • Making a Case for Classroom Airconditioning and Humidification, which includes information on the federal laws which you may find helpful in supporting your request for classroom air conditioning • Letter from NFED Executive Director, Mary Fete about ectodermal dysplasia • Memo from Mary Fete stressing the need for a cool…