Are individuals affected by ectodermal dysplasias at increased risk for respiratory problems? Our families often ask this question. In this article, Dr. Timothy J. Fete has the answer. He shares findings from numerous research studies over the years that investigated different types of ectodermal dysplasias and the respiratory issues affected individuals reported. Learn what causes…
Safer Products for Your Sensitive Skin
Many things that touch sensitive skin, which is common in ectodermal dysplasias, can cause irritation or an allergic rash. It’s easy to identify the cause of an irritant rash because it appears immediately after contact. In this article, dermatologist, Dr. Elaine Siegfried addresses how to prevent this happening. Plus, learn the difference between an irritant…
Webinar: Skin, Hair and Nails in the Ectodermal Dysplasias
Learn about four of the five major symptoms of ectodermal dysplasias in this webinar with pediatric dermatologist, Dr. Alanna Bree. She presents in-depth information about how the sweat glands, skin, hair and nails can be affected and ways to manage or treat them. You will learn: about the importance of loving the skin you are…
Palmoplantar Kerotosis (aka Keratoderma)
This library article explains what palmoplantar kerotosis is, the different types and how it affects individuals who are affected by Clouston syndrome. You will learn at what age the skin condition can appear and what to expect. Some people experience reddening of the skin. Learn what things may be causing the reddening and what are…
Ectodermal Dysplasias 101: Learn About Different Types and How They Can Affect Your Body
Presenter: Timothy J. Fete, M.D., M.P.H., Retired, University of Missouri Duration: 67 minutes With 100+ different types of ectodermal dysplasias, understanding them all can be overwhelming! In this webinar, Dr. Tim Fete gives a comprehensive overview of the conditions to help you better understand what ectodermal dysplasias are, some of the most common types and…
Webinar: Find Answers to Your Most Pressing Health Concerns
This is a recording of a webinar that took place on April 8, 2020. The NFED polled families to ask what questions they had. Drs. Butcher and Fete present information about common health concerns both children and adults who have ectodermal dysplasia experience. You will learn: Signs and symptoms of ectodermal dysplasias The importance of…
Guidelines for Vulvar Skin Care in Ectodermal Dysplasias
The article is packed with practical suggestions on how to address vulvar and vaginal issues that women affected by ectodermal dysplasias may experience. You will learn what laundry products to use and which ones to avoid. There are numerous suggestions on types of clothing and how they can affect vaginal issues. There is an extensive…
Skin Care: Sun and Bugs
Extra protection is needed when outdoor sun exposure is excessive, during warmer, sunnier months and at snowy, high altitude locations. Ultraviolet light is responsible for aging changes in the skin as well as for some types of skin cancer. This article addresses sun protection, choosing a sun screen, choosing a bug repellent and ingredients to…