This library article provides tips for ways to irrigate the nose to help with nasal crusting. Nasal crusting is common in some types of ectodermal dysplasia. It is caused by abnormal mucus production or excessive accumulation. Learn how frequently to do them, the benefits, and the recipe to make yourself at home. Also find out…
Developing Your Child’s Self-Esteem
Healthy self-esteem is a child’s armor against the challenges of the world. Kids who feel good about themselves seem to have an easier time handling conflicts and resisting negative pressures. They tend to smile more readily and enjoy life. These kids are realistic and generally optimistic. In this article learn about what self-esteem is, signs…
Breast Issues in Ectodermal Dysplasias
Ectodermal dysplasias can affect breast development in both women and men. In this article, you can will learn the following: Why would breasts be involved with ectodermal dysplasias? How often do the breasts develop abnormally with ectodermal dysplasias? What kinds of issues and concerns are there with abnormal breast development? What options are there to…
Guidelines for Vulvar Skin Care in Ectodermal Dysplasias
The article is packed with practical suggestions on how to address vulvar and vaginal issues that women affected by ectodermal dysplasias may experience. You will learn what laundry products to use and which ones to avoid. There are numerous suggestions on types of clothing and how they can affect vaginal issues. There is an extensive…
Dental Providers Insurance Tool Kit
Dental care is a medical necessity for those affected by ectodermal dysplasias, but most health insurance claims related to this care are automatically denied. We encourage individuals and families as well as dental providers to download our Dental Providers Insurance Tool Kit as a way to navigate this tricky situation. FOR DENTAL PROVIDERS Help patients…
Insurance Tool Kit
A Step-by-Step Guide to Get Medical Benefits for Dental Care of Ectodermal Dysplasias Families affected by ectodermal dysplasias encounter a wide range of challenges as they strive to meet their needs and that of their children. They face troublesome problems such as treatment issues, school concerns and dealing with insurance companies. Ectodermal dysplasias are a diverse…
Webinar: Women’s Health Study
Watch this one-hour webinar that we hosted with Jill Powell, M.D. She presents the findings from a research survey we conducted about how ectodermal dysplasias affect women. She presents data and findings regarding issues such as breast development, infertility, vaginal dryness, and more. Dr. Powell is an obstetrician and gynecologist SLUCare Physicians Group in St….
Webinar: Overview of Genetics
Watch this one-hour webinar we hosted with Dorothy Katherine Grange, M.D. She gives an overview of genetics as they relate to the ectodermal dysplasias. What are genetic conditions? How are they passed down? Is testing available? She answers all of these questions and more to help you understand the complexities of genetics. Dr. Grange is…