Ectodermal dysplasia can affect an individual’s salivary glands and cause dry mouth. In this article from Dr. Kay Motil, learn about the three different types of salivary glands and the important role that saliva plays in our health, eating and digestion. If you or your child have dry mouth because the salivary glands don’t produce…
Webinar: Skin, Hair and Nails in the Ectodermal Dysplasias
Learn about four of the five major symptoms of ectodermal dysplasias in this webinar with pediatric dermatologist, Dr. Alanna Bree. She presents in-depth information about how the sweat glands, skin, hair and nails can be affected and ways to manage or treat them. You will learn: about the importance of loving the skin you are…
Breastfeeding Guide for Women Affected by Hypohidrotic Ectodermal Dysplasia
Women who have hypohidrotic ectodermal dysplasia (HED) or who are carriers of x-linked hypohidrotic ectodermal dysplasia (XLHED) can face challenges when they begin breastfeeding such as trouble producing milk. We recommend that you make a breastfeeding plan with your doctor or alactation specialist. Use this article to learn about how XLHED affects the breast and…
Hypohidrotic Ectodermal Dysplasia and Breastfeeding: A Resource for Care Providers
This article is written for health care providers and lactation specialists to help them understand the unique breastfeeding challenges a woman affected by hypohidrotic ectodermal dysplasia (HED) may experience. Because the effects of HED are not well known, care providers might assume the breastfeeding challenges a mom encounters are because the mom is or is…
Ectodermal Dysplasias 101: Learn About Different Types and How They Can Affect Your Body
Presenter: Timothy J. Fete, M.D., M.P.H., Retired, University of Missouri Duration: 67 minutes With 100+ different types of ectodermal dysplasias, understanding them all can be overwhelming! In this webinar, Dr. Tim Fete gives a comprehensive overview of the conditions to help you better understand what ectodermal dysplasias are, some of the most common types and…
Webinar: How to Treat Nasal Rocks, Ear Wax and Other ENT Issues
This is a recording of a webinar that took place on June 20, 2020. Dr. Brandon Hopkins addresses numerous topics as to how ectodermal dysplasias can affect the ears and hearing; the nose (airway and sinonasal); oral cavity and throat. You will learn: how ectodermal dysplasias can affect the ears, including the structure, ear infections…
Webinar: Find Answers to Your Most Pressing Health Concerns
This is a recording of a webinar that took place on April 8, 2020. The NFED polled families to ask what questions they had. Drs. Butcher and Fete present information about common health concerns both children and adults who have ectodermal dysplasia experience. You will learn: Signs and symptoms of ectodermal dysplasias The importance of…
WNT10A Gene Causes Three Types of Ectodermal Dysplasia
WNT10A is a member of the WNT proteins family that is essential for the formation of tissues that arise from the ectoderm, including skin, hair, nails, teeth, and sweat glands. WNT10A is particularly important for the formation and shaping of both baby (primary) teeth and adult (permanent) teeth. Changes in the DNA) in WNT10A can…