We hosted this webinar in 2011. The ophthalmologist from our Scientific Advisory Council, Richard A. Lewis, M.D., M.S., explains how ectodermal dysplasias can affect the eyes and suggest possible treatments. Dr. Lewis is Professor in the Departments of Molecular and Human Genetics, Ophthalmology, Medicine, and Pediatrics at Baylor College of Medicine in Houston, Texas. He has…
This video documents Marc Steingesser’s PROSE Lens fitting and training experience. He created it to help inform our NFED family with EEC syndrome and other forms of ectodermal dysplasias that affect the eye, about an option for protecting (and possibly assist with healing) the corneas and improving vision.
Tears are a normal body fluid that flow continuously to lubricate the cornea (the clear “watch crystal” covering the front surface of the eye). The purpose of tears is the lubrication and cleaning of the front surface of the eye, the cornea and the conjunctiva. This article explains tear production, abnormalities and suggested treatments.
Many types of ectodermal dysplasia can include dry eyes. This article addresses: Deficient Watery Tear Production Dry Eye with Adequate Watery Tear Production Therapy of Dry Eye
Blepharitis is a common and persistent condition that can be managed but seldom eradicated forever. Certain ectodermal dysplasia syndromes can involve blepharitis. Blepharitis means “inflammation of the eyelid margin”. This article addresses: Types of blepharitis Recommendations for treatment General hygiene Eye medications. Medications taken by mouth Complications of blepharitis Results of treatment