• Blog
  • Join Us
  • Get Involved
    • Connect With Our Community
    • Advocate
      • Ensuring Lasting Smiles Act
        • ELSA Supporters
      • Ways to Advocate
      • Advocacy Resources
        • Preparing for an Advocacy Meeting
      • Register as an Advocate
      • Day on The Hill
    • Ways to Give
      • Smile Makers
      • Fundraise
      • Halloween Bash
    • Raise Awareness
      • Ectodermal Dysplasias Awareness Month
    • Attend an Event
    • Volunteer
      • Volunteer Application
  • Donate
National Foundation for Ectodermal Dysplasias
  • Home
  • About Us
    • Our Mission and History
    • Celebrating 40 Years!
    • How We Help
    • Leadership
    • Partners and Sponsors
    • Financials
    • Store
    • Contact Us
      • Update Your Profile
  • Learn
    • Library
    • Webinars
    • Symptoms
      • Skin Symptoms
      • Dental Symptoms
      • Hair Symptoms
      • Nail Abnormalities
      • Inability to Sweat
    • Types
      • Hypohidrotic Ectodermal Dysplasia
      • Ectrodactyly-Ectodermal Dysplasia-Clefting Syndrome
      • Clouston Syndrome
      • Ankyloblepharon-Ectodermal Defects-Cleft Lip and/or Palate
      • Witkop Syndrome
      • Goltz Syndrome
      • Incontinentia Pigmenti
        • Incontinentia Pigmenti Stages
        • Incontinentia Pigmenti Treatment
      • Trichorhinophalangeal Syndrome, Type 1
      • Tricho-Dento-Osseous Syndrome
      • Oculodentodigital Syndrome
    • Diagnosis
    • Genetics and Inheritance
    • FAQs
  • Research
    • Research Impact
    • Research Studies
      • Ectodermal Dysplasia Classification Studies
      • X-Linked Hypohidrotic Ectodermal Dysplasia Studies
        • Research Timeline
      • P63 Syndrome Studies
        • Ankyloblepharon-Ectodermal Dysplasia-Clefting Syndrome Studies
        • Ectrodactyly-Ectodermal Dysplasia-Clefting Syndrome Studies
      • Goltz Syndrome Studies
      • Type Unknown Studies
    • Scientific Conferences
    • Clinical Trials
    • Participate in Research
    • Resources for Researchers
  • Treat
    • Choosing a Doctor/Dentist
      • Recommend a Doctor
    • Medical Treatment Options
    • Dental Treatment Options
      • Dental Treatment Centers
      • Straumann Dental Implant Program
    • Insurance Assistance Program
      • Family Roadmap and Resources
      • Navigating Health Insurance Claims
    • Treatment Assistance Program
    • Health Care Provider Resources
  • Thrive
    • Coping with a Diagnosis
    • Meet Our Families
    • What to Expect
  • Blog
  • Join Us
  • Get Involved
    • Connect With Our Community
    • Advocate
      • Ensuring Lasting Smiles Act
        • ELSA Supporters
      • Ways to Advocate
      • Advocacy Resources
        • Preparing for an Advocacy Meeting
      • Register as an Advocate
      • Day on The Hill
    • Ways to Give
      • Smile Makers
      • Fundraise
      • Halloween Bash
    • Raise Awareness
      • Ectodermal Dysplasias Awareness Month
    • Attend an Event
    • Volunteer
      • Volunteer Application
  • Donate

Topic: Coping

What Your Child Can Tell Peers About Ectodermal Dysplasia

What do you say if you are a kid who has a rare disorder with a really hard name to pronounce? Who do you tell? When do you tell them? Those are all good questions that your child affected by ectodermal dysplasia might ask. We believe that when people understand the person is affected by a…

Tips to Help You Cope with Ectodermal Dysplasia

The diagnosis of ectodermal dysplasia can be overwhelming. Families will experience a wide range of emotions. This article provides practical tips and suggestions to help you cope with the new reality.

How to Respond to Bullying

Every day, hundreds of thousands of adolescents are victims of bullying. Bullying is a concern for many, not just the victims. But because parents, teachers and other adults can not always witness it, often they do not understand how extreme bullying can get. This article addresses: the seriousness of bullying who bullies how to stop…

DEBUG The Bullies

This article addresses the 5 steps of DEBUG and offers tips to help your child handle bullying. It also offers additional resources on bullying.

‹ Back To Library

Categories

  • Advocacy
  • Education
  • News
  • Research
  • Stories of Hope
  • Syndromes and Symptoms
  • Tips and Advice
  • Volunteer Spotlights

Topics

  • Allergies
  • Breasts
  • Coping
  • Dental
  • Ears
  • Eyes
  • Gastroenterology
  • Genetics
  • Growth
  • Hair
  • Hypohidrotic Ectodermal Dysplasia
  • Medical
  • Nails
  • Nose
  • Resource
  • Respiratory
  • Salivary Glands
  • Skin
  • Sweat Glands
  • Teeth
  • Throat
  • Tool Kits
  • Types
  • Webinars

Stay in the Know

Get email updates on what's going on in our NFED community.

  • We'll only send you NFED related materials.

  • This field is for validation purposes and should be left unchanged.

We'll only send you NFED related materials.

Sign Up for Our
Newsletter
  • This field is for validation purposes and should be left unchanged.

  • Home
  • Blog
  • About Us
  • Get Involved
  • Learn
  • Research
  • Donate
  • Treat
  • Sitemap
  • Thrive
Contact Us
618.566.2020info@nfed.org
6 Executive Dr., Ste. 2
Fairview Heights, IL 62208-1360
Connect With Us
  • Facebook
  • YouTube
  • Pinterest
  • Twitter
  • LinkedIn
Back to Top

©Copyright 2023 National Foundation for Ectodermal Dysplasias Privacy Policy