The National Foundation for Ectodermal Dysplasias is offering many of our Family Conference sessions virtually in 2021 until it’s safe for us to meet in person again.

Join us online to meet medical and dental experts and have the unique opportunity to talk with them one-on-one to ask questions. They are not just knowledgeable but compassionate.

Discuss recommended treatment options and ways to cope with the emotional challenges of ectodermal dysplasias. Learn how to advocate for yourself, for your loved one and for the entire ectodermal dysplasias community. You also can share your insights and story to inspire and help others.

These unique webinars are designed for you to learn from others’ wisdom, ask questions and discover you are in good company! In some sessions, you will have an opportunity to break into small groups to discuss what it’s like living with ectodermal dysplasias. You will get to explore and share your feelings in a safe place, where others understand.

These webinars will be Zoom meetings rather than Zoom webinars. This method enables you to see and connect better with other NFED families who are on the webinar, if they choose to have their video on.


Here is the webinar schedule for 2021. Click on each topic to learn who the presenters are and the information they will cover.

Dental Treatment Options
for Adults
February 9

How to Treat Eye Concerns
March 9

Ectodermal Dysplasias 101: Complex Syndromes
Explained Simply
May 11

Ectodermal Dysplasia: How to Treat Your Skin, Hair and Nail
June 8

A Message from the Executive Director and Syndrome Meet Ups
July 13

Pediatric & Adolescent
Dental Treatment Options
August 10

Ectodermal Dysplasias:
Top Health Concerns
and How to Treat
September 14

All There is to Know About Genetics
November 9

How to Register

Cost: $10 per webinar

Registration will close at 12 p.m. Central time the day of each scheduled webinar. You will receive the link to the webinar on the afternoon of the webinar. Recordings will ONLY be available for seven days after the scheduled date. You must register in order to receive the recording after the webinar.

Bev Meier’s Golden Ticket Fund

Scholarships are available. Funds are limited. Contact Kelley Atchison at to request a scholarship before completing the registration form.

Request Scholarship

Disclaimer: The NFED Webinar Series is not intended as a substitute for medical advice. Only a healthcare provider with a full medical history may determine the proper treatment options. Opinions shared in the sessions do not necessarily reflect those of the NFED. Webinar topics are subject to change.