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Topic: Coping

What do you say if you are a kid who has a rare disorder with a really hard name to pronounce? Who do you tell? When do you tell them? Those are all good questions that your child affected by ectodermal dysplasia might ask.

We believe that when people understand the person is affected by a condition, they are less likely to make fun of someone. This resource helps you as a parent develop a plan with your child on what to say to peers about ectodermal dysplasia and how to do it.

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