We have created a support network of Family Liaisons to give you the opportunity to talk to others who have experience living with ectodermal dysplasias, and to share your feelings with others who understand.
Family Liaisons are volunteers who are affected by ectodermal dysplasia or who are the parent of an affected child.
Family Liaisons provide moral support, information and practical advice, guidance, education, resource information and increase awareness and events for families. We encourage you to reach out to the Family Liaison for your region.
Please fill out the following form to access the resource: